Before I ever knew I had Wegener's Granulomatosis, I had to receive a tracheostomy to breathe during my first pregnancy. It was the most terrifying time in my life, for many reasons, and I searched the Web for anyone and everyone who could listen to me, relate to me, and talk to me about all the things that most others couldn't.
Daniella was one of them.
While she didn't have a trach, she did share my eventual diagnosis--we both had WG. And through that common bond, we have been able to relate to one another on various other levels as well.
This extremely rare disease that we both share treats us both very differently. We have different symptoms. We are fighting different battles on a daily basis. But in the end, the war is the same. We both have the same end goals.
It was so wonderful to have met her in person a few weeks ago. There was something almost surreal about listening to another person in the room say, "I have Wegener's." She was just as lovely in person as I imagined she would be, and I hope our friendship continues to grow.
Heck, I hope I can convince her to move to Colorado some day. ;)
Thanks again, Daniella! You have been blessed with some pretty delicious kiddos, and Nate was a lot of fun. See you soon, I hope. :)
xoxo
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